top of page

Speaking Services

Speaking

Vamsi, Maurya's dad is an Author, Speaker, Rare Disease Advocate, Clinical IT Program Manager and a Filmmaker. Vamsi is offering Speaking services in return for your donation to Maurya Koduri Foundation. Vamsi is a passionate speaker and represented several events on various topics. He is the author of the book- The Pursuit of Triumph. He is the Illinois state Ambassador for Spastic Paraplegia Foundation. He represented  his community to speak at the IPSD School board about the boundary rezoning issue. Vamsi was also a guest speaker at All Star Code summer Intensive program 2023. 

 

TOPICS CAN BE TAILORED TO A GROUP OR AN ORGANIZATION AND INCLUDE:

​

  • Finding a New Normal: A Roadmap for Parents Facing the Chronic Illness of a Child/ dealing with a Rare Disease child

  • Managing emotions and tolerating frustration in the realm of rare disease

  • Building resilience for parents 

  • Spreading the message of Hope and Spreading awareness about Hereditary Spastic Paraplegia

​

Please check out Vamsi's Speaker Reel below (2.5 minutes)

The Pursuit of Triumph

In the Pursuit of Triumph, Hope always triumphs..

Vamsi Koduri narrates his heart warming and heart wrenching experiences of his first born, a special child- Maurya Koduri while navigating other aspects of his life. All sales in the past have been donated and all sales in the future will be donated towards the research of Hereditary Spastic Paraplegia.

  • Amazon
  • Amazon
  • Amazon
  • Amazon
template.jpg

You can help find a cure for this rare disease today

Hereditary Spastic Paraplegia (HSP SPG4)  disease is very rare and so there is less incentive for companies to allocate money towards researching the disease and its cure. There is very little funding from the government.  SPG4 is progressive and currently there is no cure to reverse or stop the progression. It is extremely important for affected individuals and their families to help fund the research necessary to help find a cure. With the generosity of selfless donors, we can help Maurya and other deserving children, adults, and their families that have been afflicted by this rare disease.

Follow us

  • Facebook
  • Youtube
  • LinkedIn
  • Instagram
  • Twitter

Sign up for our email list to hear news and updates on Maurya's progress, research and special events.

Thanks for submitting!

Copyright © 2023. All rights reserved. Maurya Koduri Foundation

bottom of page